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Frequently Asked Questions

This page was created in collaboration with people living with dementia, carers and family members. We asked them to reflect on their journey and any key questions they've had along the way.

These are the questions they wish they had thought to ask and about information that's important to know but difficult to find.

We hope this page will be especially useful as a starting point for people who have recently been diagnosed with dementia or who have just started their caregiving journey.

For people diagnosed with dementia

I've just been diagnosed with dementia. What do I do now?

How can I learn more about my type of dementia?

Are there any local support groups?

Is there somebody I can talk to about my worries and fears?

Where can I find someone from my culture to talk to, who might be able to understand me better?

What if I feel shaky on my feet or am afraid of falling?

How do I organise my affairs and prepare a will?

For carers and families of someone diagnosed with dementia

My family member appears to be showing symptoms of dementia. How can I encourage them to see a doctor?

Where can I receive training to care for someone living with dementia?

Where can I go for assistance with changing behaviours if I am unable to manage them?

How do I care and access support for a person who has not accepted their dementia diagnosis?

Are there any carer support groups in my area?

What if I require home medical equipment? How do I make this happen?

What financial support is available to me?

How do I start having difficult conversations about planning for the future with the person I care for?

How do I recognise when I need a break as a carer?

What are the legal implications of a dementia diagnosis?

What can I do if I'm concerned about the care my partner, relative or friend is receiving from a health professional or community provider?

What is going to happen over the course of the disease? What can I expect in the future?

What if I am outside the North Brisbane and Moreton Bay region?

Frequently asked questions

We acknowledge the Traditional Owners of country throughout Australia, their diversity, histories and knowledge and their continuing connections to land, waterways and culture. We pay our respect to all Australian Indigenous Peoples and their cultures, and to Elders of past, present and future generations.

We would like to express our gratitude to all the healthy ageing advocates, including people living with dementia, older people, families, carers and health professionals, who contributed to the development of this portal. Thank you for sharing your stories and transferring your knowledge to make this portal purposeful and meaningful to support people in the North Brisbane and Moreton Bay region.