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Young people with dementia

Anyone can develop dementia, including people under the age of 65.

As a diagnosis is often unexpected, people living with younger onset dementia may experience unique social, emotional and financial challenges.

Home care and support options

There are home care and support options available for people who need additional care under the age of 65 years. This can help you stay connected to your community, take care of your health and safety and remain independent.

Services may include:

  • help at home
  • social support
  • personal care
  • transport
  • health care
  • respite.

Younger Onset Dementia Hub

This website provides information on referral and support options, including the Living with Dementia program. This is a group program for people living with younger onset dementia and their support person to meet and talk with others in a similar situation.

National Disability Insurance Scheme (NDIS)

A Commonwealth Government program that provides funding for people under the age of 65 with a permanent and significant disability. It connects people living with dementia to reasonable and necessary supports and services to help in daily life.  Operates Monday to Friday, 8am–8pm.

Queensland Community Support Scheme (QCSS)

A support scheme that can help you maintain independence and connect with the community. Support can be accessed for people under 65 years old who are not eligible for the National Disability Insurance Scheme, and Aboriginal and Torres Strait Islander people under 50 years old.

Private care services

Many companies and organisations offer fee-for-service home care. You can contact organisations directly to find out what care they provide. You choose what services you want to purchase and are responsible for paying the full costs. This option is ideal if you: need home care services immediately; are looking to specifically tailor your care to meet the exact services you need; are waiting for government funding; but need care services while you wait or are under the age of 65 and not eligible for government funding.

You can find organisations providing private care on the MyAgedCare website on the 'Find a provider' page.

Note: you don't need an assessment or to speak with My Aged Care to contact providers about private care services.

Young people with dementia

We acknowledge the Traditional Owners of country throughout Australia, their diversity, histories and knowledge and their continuing connections to land, waterways and culture. We pay our respect to all Australian Indigenous Peoples and their cultures, and to Elders of past, present and future generations.

We would like to express our gratitude to all the healthy ageing advocates, including people living with dementia, older people, families, carers and health professionals, who contributed to the development of this portal. Thank you for sharing your stories and transferring your knowledge to make this portal purposeful and meaningful to support people in the North Brisbane and Moreton Bay region.